WEBVTT 00:20.960 --> 00:22.960 Hello 00:22.980 --> 00:26.520 Right from the beginning I say OK you're at a special school, but we don't know all the 00:27.040 --> 00:28.760 answers, we have to work together. 00:28.780 --> 00:31.720 OK everybody here? 00:31.740 --> 00:35.880 And it's about everybody working as a team to try and find the answers. 01:04.400 --> 01:10.490 When you're running a clinic in a hospital setting, you've got a set of questions, that 01:10.510 --> 01:15.060 you don't feel comfortable to finish the clinic unless you go through all of these 01:15.080 --> 01:18.890 questions and answers and you cover everything, plus do a physical examination. 01:18.910 --> 01:20.950 You've got to park that. 01:35.770 --> 01:40.200 Every time you have a clinic often different things come up with the parents, so it's 01:40.220 --> 01:46.720 really about that working together; and working with all of the professionals. 01:46.740 --> 01:52.610 A school clinic is not an abbreviated version of what a real clinic is at a hospital. 01:52.630 --> 01:58.340 It's going in and addressing an issue in a much more holistic & integrated point of view. 01:58.360 --> 02:03.760 As clinicians we don't know all the answers, and sometimes when we think we have a solution, 02:03.780 --> 02:08.480 if we don't know what's happening for families, solutions can't work if we don't know 02:08.500 --> 02:10.180 what's happening for them. 02:10.200 --> 02:15.140 We know for a fact that young people with intellectual disability and/or other 02:15.160 --> 02:22.060 complex illnesses, usually have a very large amount of people around them to assist with 02:22.080 --> 02:22.660 their needs. 02:22.680 --> 02:28.980 So we're talking medical clinicians, paediatric respite, services from the NGO sector 02:29.000 --> 02:32.740 disability services...whatever is involved in their care. 02:32.760 --> 02:38.210 On your own trying to manage all these different appointments and doctors and clinics 02:38.230 --> 02:40.780 it's very overwhelming at times. 02:40.800 --> 02:47.960 And I guess it gave me a sense of relief that finally a group of people are taking his 02:47.980 --> 02:54.740 health needs, taking them on hand and actually helping me with that. 02:54.760 --> 02:56.700 How are you going? 03:04.720 --> 03:08.460 Kids with disabilities have lots of problems from a health point of view. 03:08.480 --> 03:11.490 many different health problems, emotional problems. 03:11.510 --> 03:14.430 It's very difficult for the families, very stressful. 03:14.450 --> 03:16.470 There are all sorts of issues. 03:16.490 --> 03:21.360 It's uncomfortable for some parents to actually tell you exactly what's happening at home. 03:21.380 --> 03:23.780 You know they don't want to put all their dirty linen out there. 03:23.800 --> 03:28.540 But it all comes out and they can trust, then you're actually making decisions not only 03:28.560 --> 03:33.750 for the students' engagement in the school, but at home their overall wellbeing 03:33.770 --> 03:38.460 and you're actually setting the priorities as per the students needs, 03:38.480 --> 03:41.020 wants, and the family's needs. 03:44.040 --> 03:45.520 It's about the environment. 03:45.540 --> 03:51.460 It's making sure that the parents don't see you as being the "principal", 03:51.480 --> 03:54.700 but that you are there to listen to them. 03:54.720 --> 03:59.410 What you are doing in a clinic situation is actually seeing how it's like 03:59.430 --> 04:00.740 living with a disability. 04:00.760 --> 04:04.700 What can you do to make it more comfortable? 04:04.720 --> 04:08.300 You know something that is really important, that you might not think is important, 04:08.320 --> 004:13.740 but it's important for the family can significantly affect their health, and wellbeing & happiness. 04:13.760 --> 04:15.220 You need to address those issues. 04:15.240 --> 04:17.860 That's what you're there for, to actually help. 04:17.880 --> 04:22.430 Clearly, you've got to actually give them the background medical issues but you've 04:22.450 --> 04:27.420 got to focus on the issues as how it actually impacts on their life.